Not sure why you would care about me but hey, it is nice to think people care.
So who am I?
So who am I?
I have ADHD and ASD
I live in the UK.
I lost my wife to a brain tumour.
She was ill for 6 years.
We were together for 8 years.
After she died, I decided something good should come out of this tragedy and I went back to university.
Life does go on and I was married to a new lady, until she decided to have a secret relationship for many years with some bloke I considered a friend. I am still trying to deal with that. That is not going well at the moment.
I like music. A lot. I play guitar (badly) and I sing (better).
And this is me:
Why is this blog called Endless Waterfall?
I live in the UK.
I lost my wife to a brain tumour.
She was ill for 6 years.
We were together for 8 years.
After she died, I decided something good should come out of this tragedy and I went back to university.
Life does go on and I was married to a new lady, until she decided to have a secret relationship for many years with some bloke I considered a friend. I am still trying to deal with that. That is not going well at the moment.
I like music. A lot. I play guitar (badly) and I sing (better).
And this is me:
Why is this blog called Endless Waterfall?
It's named after a song by Cris Williamson.
Sometimes it takes a rainy day
Just to let you know
Everything's gonna be - all right
All right
I've been dreaming in the sun
Won't you wake me up someone
I need a little piece of mind
Wake me from this dream
That I have dreamed so many times
I need a little piece of mind
Oh, I need a little piece of mind
When you open up your life to the living
All things come spilling in on you
And you're flowing like a river
The Changer and the Changed
You've got to spill some over
Spill some over
Spill some over
Over all
Filling up and spilling over
It's an endless waterfall
Filling up and spilling over
Over all
Filling up and spilling over
It's an endless waterfall
Filling up and spilling over
Over all
Like the rain, falling on the ground
Like the rain, falling all around
Sometimes it takes a rainy day
Just to let you know
Everything's gonna be - All right
I know, I know, I know all right
Filling up and spilling over
An endless waterfall
Filling up and spilling over
Over all
The most touching blog I've ever read! You both are very special women. I can only hope I managed with half of your patience and pray I conveyed such love to my husband during his 2 year battle with kidney cancer and mets to his brain.
ReplyDeleteAw thank you. That is a lovely thing to say. I am sure you did a great job with your husband. I believe it is our willingness to look after someone that shows our love, not how perfect we were at it. If that makes sense. I miss Jane but I am happy again. I hope you will find happiness in your life too, be that with a new love or on your own. I would say we deserve it :)
ReplyDeleteHi there
ReplyDeleteI discovered your blog about Jane about a month after my husband was diagnosed with Grade 2 Astrocytoma. He appears so well right now, that its been hard to conceptualise what this will progress like for most people, including myself. I probably read the blog a little too soon and spent a good month crying in a corner somewhere, but I am so grateful now that I did.
We have a full understanding that our time is limited - not just physically but also limited in terms of what that time will be like. We've been able to plan things better and take our limited times more seriously. I read your blog, I knew exactly what to ask the doctors and from that, I have been given a very clear message - we will not cure him, but we will help him along. Use your time wisely. A message I see so absent in your earlier posts, and I feel sad that you didn't have the same resource to pull from. And thank you that you made sure we did.
I also refer to your blog when I just need support dealing with my own feelings about this as a partner. Anyway, I tried to find a way to contact you more privately than this, but I really wanted to thank you.
Michelle
Hi Michelle,
ReplyDeleteI am so sorry to hear about your husband's diagnosis. However, keep in mind that every patient is different. Some people do live for decades after diagnosis so please don't think that just because Jane was unlucky, the same journey is waiting for you and your husband. It also depends on the location of the tumour so you may find that his cognitive functioning is not affected as much as Jane's was.
I am glad that the blog at least helped you to voice your concerns and ask the doctor the difficult questions they never seem to be willing to bring up themselves!
Finally, I am very glad that you are finding the blog helpful in this difficult journey. Jane would have found it extremely nice to know that her story is helping people in a similar situation.